Category Archives: Down Syndrome

Meet Way

way

I’ve been looking forward to having Way on the blog all month, and today is the day! Four-year-old Way is similar to my Sammy in many ways, making the chats I get to have with his mama, Lindley,  so encouraging and real. You can find Lindley and her family on Instagram as @OurMorningGlories and on her blog Our Morning Glories.

cutie-waya

What would Way do if he could design his own day?
If Way could design his own day, it would definitely include a trip to the park to play on the playground and swings. Probably followed up with a trip out to the store (he loves running errands with me because he is a social butterfly)! Then, I think he’d choose going to hippotherapy, where he gets to ride his fave horse, Gwinnie, or to music class (he loves music)! Or maybe the library or storytime, because he can’t pass up a good book! We’d have to include time to play with his brothers, too. And to top off his day, he’d vote for a bubble bath for sure!!

img_0164a

 Who does he love to spend time with?
He absolutely adores his 3 big brothers and the feeling is mutual!

What does he do with his brothers?
They love to play together, which often involves big brothers making up crazy songs and encouraging Way to repeat them! Big bros love to read to Way and help teach him how to do basic tasks! They have a contest every morning to see who can go into Way’s room the fastest—it’s playtime before they head off to school!

img_1259

What is something you want everyone to know about them?
I want everyone to know that Way and others born with Down syndrome are fearfully and wonderfully made! God makes no mistakes and that includes ALL of us! Way brings joy to everyone who interacts with him and loves so fiercely it’s unbelievable!

What have been good resources for you to learn more about Down syndrome?
For me, the technical books haven’t had as much of an influence as I thought they would. I expected things to be so different when we found out about his diagnosis while I was pregnant with him. However, Way truly is more alike than different!! So the best resources for me are often the ones I find in relationships. Meeting people in town who have loved ones with DS and the Insta community as well have both been very helpful!

waybe-school

 

 

Check back tomorrow as we continue celebrating Down Syndrome Awareness Month or click below to read all of our previous posts.

dsam-logo-2016a

Save

Save

Save


Share

Meet Abby & Bailey

abby-bailey

Today is a big day for one of these two sisters – Miss Bailey is six! Happy birthday, silly girl! You guys, I’m so excited to have these girls on today. I have followed their family on Instagram for years and am constantly inspired by them. When Bailey was just little, Miss Abby became her forever sister through adoption. (She’s now six, as well.)  A big thank you to their mama, Christy, for loving your kids so well and being such an inspiration for so many! You can follow Christy and her family on Instagram at @cjpics.

 

abby2

Miss Abby

What are some things Abby and Bailey enjoy doing?

Abby loves all things musical. She sings at the top of her lungs (and carries a tune better than anyone in our family!), plays her toy guitar, recorder, etc. Girlfriend can make some noise, ha! She also loves to learn and gets excited when its time to do her Kindergarten homework.

Bailey is really into playing with Play Doh and playing with her Peppa Pig characters. She is very social and is a big ham – the more people she can make laugh, the better.

bailey

Miss Bailey

What are their favorite or least favorite foods?
Abby – anything with sugar – cookies/candy/cake. Abby is a very slow eater until she has a sugar treat in front of her and then she can eat faster than anyone around.
Bailey – anything with salt – mostly macaroni & cheese, pizza, etc.   Bailey is what we call an “enthusiastic eater” – she loves to eat and will often stop eating to tell us “Good cook, mommy!”, or “mmmmm, delicious!”

What are a few things the girls are really good at?
Abby has great memorization skills. If its something that can be memorized, she can do it. She’s in kinder and knows all of her letters, the sounds they make, can count to 100, knows all of her numbers, can write words, is learning to read site words, etc. She can also sing songs super well – we always recognize the tune of whatever she is singing.

Bailey is great at making people laugh. She loves to build and use her hands – she makes incredibly cool structures with magnet tiles, blocks, etc. She’s really good at taking knowledge she has and applying it to new situations.

siblings

What have the girls taught their big brother? What has he taught them?
They have taught our son that there is nothing wrong with having Down syndrome. A few days ago a friend of his was asking (not in a mean way) how it could be that both girls were born with the same “problem” of Down syndrome. Taylor’s response was that it is not a problem to have Ds, its just a part of who they are. We told the little boy that it was just like that he and his sister were both born with blonde hair, it isn’t a problem, its just a part of how they are.   I love that the girls have taught Taylor that differences are okay, and everyone has a gift to share with others.

Taylor teaches the girls things every day. He has a sweet voice he uses only for them, and if he can tell there is something one or both of them don’t understand, he will use his sweet voice to explain it to them in terms they understand.   They love and admire their big brother!

What is the most wonderful part of knowing Abby & Bailey?
The joy they bring to us and others. There is not a day that goes by that we do not smile and giggle at something they said or did.   We have also met some of our best friends through these girls!

 

sisters

 

Check back tomorrow as we continue celebrating Down Syndrome Awareness Month or click below to read all of our previous posts.

dsam-logo-2016a

 

Save

Save


Share

Meet Jonah

jonah

Here to celebrate day 26 of Down Syndrome Awareness Month is the energetic, athletic, seventeen-year-old Jonah! I’ve known Jonah’s family for years. His sister, Anna, is a dear friend of mine, and his mom, Laura, was an inspiration to me even before I joined her on this journey of parenting a child with Down syndrome. It’s been really fun for me to catch glimpses of Jonah as an uncle the last few years and to dream about seeing Sam in that same spot down the road. Laura shares a few things about her son today as we near the end of  this month of celebrating. You can find Laura on Instagram as @throughlauraslens. Thank you, Laura & Jonah!

13227457_10207737500848388_3304388658618966532_o

What are some things Jonah likes to do?
Jonah is very social. As a Junior in high school, he is taking in everything he possibly can. Currently he is the football manager and will be the basketball manager this winter. He is FULL of school spirit  and can be seen giving the players pep talks on the sidelines, has been known to write out plays and give them to the coaches after a rough game, and will run in front of the student section to get them on their feet cheering for the team! He is worth the admission fee to watch him in action!!

What is something he’s really good at?
Jonah has achieved his black belt in karate!

What is the most wonderful part of knowing him?
Jonah is his own unique self. He believes he can do anything! He teachers me every day to not be afraid to try!! I can’t imagine life without him.

12671769_10207261242102217_5146777934897202819_o

 

Check back tomorrow as we continue celebrating Down Syndrome Awareness Month or click below to read all of our previous posts.

dsam-logo-2016a

Save


Share

Meet Gracie

gracie

 

Gracie!! Do you remember this sweet face from her post a year ago? Oh, she just melts me! Miss Gracie is two-and-a-half now and you can see her on her mama’s Instagram feed @jme027 and on their blog NormalAsWeKnowIt.com. Thank you for celebrating with us today, Gracie and Jamie!

img_9414a


What are Gracie’s favorite or least favorite foods?
Gracie loves all food. She has quite a personality and it comes out in full force when she is eating yummy food. I joked on her first day of school chalkboard that she wanted to be a food critic when she grows up! She loves any sweets, but every day she usually eats avocados, green smoothies, hummus and crackers, and PBJs! She eats better than my 5-year-old.

img_8843


What has Gracie taught her brother? What has he taught her?
One of the things I most passionate about is God’s calling on my life to spread the word that Gracie is #morealikethandifferent . She loves her precious brother, Gage, and he adores her. Whenever we talk to Gage about Gracie and how she has Down syndrome, we always tell him that she is just like him, but may need a little extra help and a little extra cheering. He has taken that advice and blown us away by how loving and compassionate he is with her. He has extended that same compassion to others with special needs and it is clear to me what a blessing Gracie is to him as he grows. He can’t help but be better because of her, and so are we. He is her greatest teacher, too. If he sees me working with her on something, he wants to do it.

img_8830


What is something you want everyone to know about your daughter?

Gracie is not a burden to us. She is a blessing to us in every way. Gage will be a more compassionate, loving, encouraging person because he has had the opportunity to grow up with Gracie. And Gracie? She will forever have a big brother that will change the world for her. He knows God created Gracie perfectly and he wants to spread the word that Down syndrome is awesome.

img_9562

 

Check back tomorrow as we continue celebrating Down Syndrome Awareness Month or click below to read all of our previous posts.

dsam-logo-2016a

 

 

Save

Save


Share
Design by: Bumble + Buzz Design // Copyright © The Mango Memoirs