DSAM Jimbo

2015-10-11 12.08.23 am


One thing I love about being a part of a great big community of families who have loved ones with Down syndrome is that I get to see people who are further along in their journey than I am. One of my favorite families on Instagram is Jimbo’s. Today, Jimbo’s sister, Pam, shares a little glimpse into what his life looks like now and how his pure joy is effecting people every day. You can find Jimbo on Instagram at @jimbo_is_the_man.

James, “Jimbo”, is the 9th of 11 children. He is 53 years old and despite the fact that he is non-verbal, he is the funnest and funniest person to be around. He has the biggest and best personality of anyone we know. He will definitely light up the room with his smile and his laugh. We have given him the motto, “no bad days”, because, truly he doesn’t seem to have one. He goes to a day program/workshop Monday thru Friday; he likes to watch t.v., and hang out with his family. Turn some music on and he’s up dancing or tapping his hand to the beat. He loves coffee and diet coke!

He came to live between my house and our sister Julie’s house, (I am the 11th and Julie is the 7th), after our dad passed away in 2006. (our mom passed away in 1998)  Living between our two houses was something that began right after our dad passed away, even though we had not planned it that way originally. We must give God the glory for how it all worked out so wonderfully. Our husbands and children have been so incredibly supportive by taking him in without reservation.

His IG account was started by Julie’s youngest daughter, my niece, Amy. A few of our family members were following families on IG with young children with Down syndrome and Amy said that we should start an IG for Jimbo because we didn’t see very many accounts of grown-ups with Down syndrome.  So Amy started @jimbo_is_the_man!

 The families that we have found through this community have inspired us more than you all will know. If our parents could have had the connections that we all have today, they may not have felt alone in their journey. We are very grateful to have found so many wonderful families through Jimbo’s Instagram account.

2015-10-11 12.04.18 am


Chromosomally Enhanced shirt from Littlest Warrior Apparel.

Click below to read all the stories from Down Syndrome Awareness Month!








We have another very special post today, because today is Yoel’s 5th birthday! Yoel’s mom, Michelle, took the time to answer a few questions about her relationship with her son for Down Syndrome Awareness Month. You can find Michelle on Instagram at @m_chellesal.

How/when did you find out your loved one had Down syndrome?
Our little firecracker was born at 36 weeks and 3 days. He made his grand entrance with no complications. But as soon as he was placed in my arms my mom had an unsettling feeling something wasn’t right with our baby boy. She didn’t know how to tell me that she suspended he had Down syndrome. She insisted I ask his pediatrician to check if he was okay. Just to reassure her, I did as she told me. To be on the safe side his doctor suggested that Yoel should be tested for chromosomal abnormalities, a blood test called karyotype. The nurses took him back to get his labs drawn, and we were sent home the next day. We loved Yoel so much, we cuddled him, and kissed him all day and night . At his one-month check up, I was told the news that he was positive for Trisomy 21. Yoel was on the examining table with his aunt and I was sitting down. All I could remember were those words, Down syndrome, Down syndrome repeating itself all over in my head. His doctor kept assuring me that all would be okay. All I could do was cry. I cried for my baby boy. I felt like we had the wrong baby with us. I cried for his future. But little did I know that all along he was the one, the little boy I dreamed of, the perfect little boy to fill our home with hope, faith, love, and so much happiness. The future is so bright for him and us. He is our miracle baby.


What were some of the emotions you had when you got the news?
I felt betrayal. I felt lost and scared. I couldn’t believe this was happening to me. I did everything right during my pregnancy. I felt all emotions, anger, hate. I wanted to go far, far away from here with my son and husband. I wanted to prove the doctors wrong, that nothing was wrong with my son. The crying that we did for days helped heal those ugly wounds in our soul. We started to pray, I started to find God and how good he is. That his plan for our journey was the perfect one. He made no mistakes and he made Yoel in his perfect image. He knew what he was doing when he blessed us with him.

One of the most challenging things about having a child with Down syndrome is…
Therapies are so hard to get used to, as well as doctor appointments. Even after four years I should be a pro at keeping up with the scheduling, but I am not.

What have been good resources for you to learn more about Down syndrome?
I do not know if it’s a resource, but I have found families with kiddos with Down syndrome on Instagram to be my biggest resource. I connect with awesome mommies and their awesome kiddos daily. They guide me when I need help. I cheer their kids on and they cheer mine.




Click below to read all the stories from Down Syndrome Awareness Month!





DSAM Kaycee



Happy 2nd birthday, Miss Kaycee! What a treat to be able to celebrate such a darling little girl’s special day by sharing a few very inspiring words from her mama, Angela. You can find Angela on Facebook and on Instagram as @angelarobbins.

Kaycee had a pretty quick entrance into the world, and I didn’t have to wait long to meet her. But after giving birth to her two older siblings, I knew there was something curious when she came out without even a bit of crying. When I laid eyes on her I knew, I knew she had Down syndrome. At first I just figured I was losing my mind. Only women in their forties have kids with Ds, right? So I just didn’t say anything assuming the doctor would be sure to confirm my crazy. Well on her forth day I took her in to our pediatrician who so sweetly informed me there may be a possibility of Down syndrome. Three long weeks later we got the confirmation of Down syndrome but the surprise of the mosaic form. We had done plenty of research and knew exactly what that meant: nothing. Regardless of any diagnosis, she was still our daughter who we have the privilege of loving on and raising up right along side our others.

She’s now almost two and I can easily say she’s so much like any other kid. She gets into plenty of toddler trouble, has an adorable silly face, and just melts into your arms when you hug her. My favorite quote is this by Kelle Hampton: “Want to know what having a kid with Down syndrome is like? It’s like having a kid.” Every kid, crazy chromosomes or not, is their own kind of special.


For those receiving a Down syndrome diagnosis I’d recommend getting in touch with your local Down syndrome association. Ours sent us a huge binder full of information, both practical and emotionally supportive. They can also get you hooked up with other families and support groups (both online and local). There are also a few books out there to help you walk through the emotions you may have after receiving a diagnosis, namely “Gifts” by Kathryn Lynard Soper. And plenty of great blogs, too! The Mango Memoirs, of course! Kelle Hampton, A Perfect Lily, Confessions of the Chromosomally Enhanced, The Lucky Few, Deanna J Smith, Normal as We Know It, and Down Right Perfect are all good places to start (just to name a few!).



Click below to read all the stories from Down Syndrome Awareness Month!







2015-10-10 03.06.40 pm

Today, our post comes all the way from Australia! Ruth is the proud mama of Eden. You can find Ruth’s blog at PerfectByDesignx2.com. She also has a page for her blog on Facebook and can be seen on Instagram as @perfectbydesignx2.

Eden was diagnosed with Down syndrome post birth. Initially I was flooded with disbelief and an array of raw emotion. Tears, oh the tears! Two-and-a-half years on and Eden is the light of our life. She does not have a disability. She has different abilities. She transforms a room wherever she goes and melts the hearts of all she meets. (Few people can do this.) She has brought out the best in us, her family! Thanks to her, our lives have slowed down dramatically and what really counts (family) is where we spend our time. Eden has overcome many obstacles, one being open heart surgery at 10 weeks old! Eden has met all her developmental milestones (except speech) in the same time frame as her typical peers. That’s huge considering the first three months of her life were spent lying on her back trying to stay alive! We are excited for what the future holds for our girl and the Down syndrome community as a whole.


2015-10-10 03.06.54 pm


I recently discovered this amazing video of Eden with her daddy on Ruth’s blog. Click here to watch it. Sooo cute! It will melt your heart.


Click below to read all the stories from Down Syndrome Awareness Month!




Design by: Bumble + Buzz Design // Copyright © The Mango Memoirs